Friday, April 21, 2017

What We Do for Fun

J and Tweety had spring break a few weeks ago. It was delightful! No travelling, but we still had lots of fun enjoying a restful break from school.

Big C's therapy center didn't have a spring break, so he went to the center every day. He likes his routine! Since we knew we would have several hours before picking up Big C every day, we scheduled in lots of reading time and hanging out at the library - things that Big C is not fond of. I know! The library may not sound like fun, but we're kind of book nerds over here! Reading is what we do for fun!
Tweety found one of my editing books from college days. She was fascinated - a girl after my own heart!
Don't worry! We did other stuff besides reading!
 Jumping around with friends!
 Cousin time!
And Big C enjoyed chilling with us and his music when he got home every day! Love spring break!
Looking forward to summer!

Monday, April 17, 2017

More Mobility

We get excited over here when packages arrive, especially when the package is really big and we've tracked the package's daily progress across the country on it's way to our house.

Last week Big C's new ride arrived - an Advance Mobility Freedom stroller! We're excited!
We've talked for a while about getting a new stroller for Big C. He's now too big for a regular jogging stroller, and we knew we needed something different for this spring.

Going on walks with Big C is a favorite! I love being outside, and he loves riding in the stroller and watching cars, so when his feet started dragging on the ground last summer during our walks, that was our cue to start considering his mobility options.

If you know Big C, you know that he is very mobile and full of energy! Unfortunately, that doesn't translate into an ability to go on long walks. He needs assistance with that, which is where this new stroller comes in.

Thanks to a generous Christmas gift from our church, we were able to purchase an adaptive jogging stroller designed to hold individuals up to 200 lbs. Obviously Big C has lots of room to grow!

We didn't need a stroller quite this big, but when it comes to adaptive strollers, we couldn't find any in between sizes. So Big C gets a big stroller that will accommodate him for years to come!
He's excited and loves riding in luxury! I love spending time with Big C and getting exercise. Plus, some days riding in the stroller is the only thing that will help Big C regulate his emotions. (Going for walks can help my mood, too!)

We've already tested out the stroller quite a bit this past week and are so, so happy with it. Now if I only I could convince someone to push me around in it from time to time!

Sunday, April 2, 2017

A Decade with Our Favorite Girl!

Happy 10th birthday to Tweety! Ten whole years with our favorite girl! Life doesn't get much better than this.

Tweety loves to make us smile and laugh!

Silly faces - 2011
 Silly faces - 2017

Here's Tweety's annual, year-in-review video! {Click here or watch below}
Happy 10th Birthday 2017 from Amber on Vimeo.

Thursday, March 23, 2017

2017 Basketball

Another milestone...this was J's last season to play township basketball. Next year he'll play on his school's team if he makes the cut. Time just won't stop or slow down.
 Matt's last season to coach, too. Sadness.
 Tweety and Big C were J's biggest fans!! Watching other teams play was fascinating, too, especially for Big C!
The end of a season. A little sadness that my boy is growing up. A lot of happiness that each stage of life with these kids is sooooooo much fun!

Friday, March 10, 2017

The Emotions of a Dentist Appointment

A couple weeks ago I took Big C to his routine dental check-up.

Maybe I shouldn't use the word "routine." Maybe "regular" fits better. J and Tweety have routine dental check-ups...typical office, typical wait time, typical sitting in the lobby reading a book until they're done.

Big C has regular check-ups in that I schedule them regularly like a good mom. They, however, are never routine.

I kinda dread the dentist appointment day for Big C.

This time, I was pleasantly surprised with how well he did waiting in the lobby for his turn. Sometimes medical offices make him very upset, but he's really starting to move past that. He had his trusty Magic Moves Electronic Wand, which is my go-to toy for him in these settings. (Thanks, Uncle Craig, for fixing it!) It calms him even better than listening to music on my phone.
 
The office staff thought that the Magic Moves Wand was the best sensory toy ever! I had people flagging us down so they could get the name of the toy to look up on Amazon!

The rest of the appointment wasn't so great. 

The minute we walked into the examination room, it was all tears and crying and gagging for Big C. Three of us were in the room with him...the dentist, her assistant and I. We all know our roles - the assistant and I try to keep Big C from moving or grabbing things, while the dentist works quickly to clean and examine his teeth without getting bitten. 

At the end of the battle, the dentist looked at me and kindly said what I've been wondering if she would say for the last three years: "We'll try one more appointment like this. But if he is this upset at the next appointment, we will have to schedule his check-ups at the hospital where we can put him under so I can properly examine and clean his teeth and get x-rays."

I had suspected that this day was coming. I knew there was no way the dentist was accomplishing much with Big C so inconsolable. (She is, by the way, a fantastic pediatric dentist!)

Still, it made me sad. Sad that Big C had just gone through so much trauma over a teeth cleaning. Sad that I couldn't explain away his fears. Sad that I couldn't bribe him into sitting still (I totally would do that if I could!).

It wasn't a tidal wave of sadness. Just a ripple washing in - a reminder that life is sometimes so hard for our little guy. But then the smiles were back once we were in the car driving home. If you want to talk about a tidal wave of emotions, just listen to this boy giggle and laugh and throw in one of his awesome hugs for good measure - now that's a tidal wave! It'll pretty much flood your day with joy!

Friday, February 24, 2017

THE Weekend | A Recap


Last Friday at this time I was with Big C at his therapy center, so I thought I'd let you all know how the potty training is progressing. And, yes, it is progressing!

I really didn't want to go to the center with Big C last week. Not because I didn't want to be with him but because in the past my presence there (and previously at school) has really upset him. And that's no fun for him or me.

J, Tweety and Matt were praying. Friends were praying. And as I walked into the center with Big C, a beautiful thing happened. He loved having me there! He didn't want me to leave. And he didn't want to leave. It really was, much to my immense surprise, a fun day spending time with my little man and getting to meet more of his therapists and see what he does every day. So, so thankful for that answer to prayer!

We pushed lots of fluids, had lots of success on the toilet, and I felt ready to continue the program at home the rest of the weekend.

Overall it hasn't gone as well as I had hoped, but it hasn't gone as terrible as I feared either. So I think that's a win!

Definitely far from being done with this, but I'm very hopeful this time around! I'll gladly spend hours in the bathroom every day if it means that he can gain independence in this area!

Wednesday, February 15, 2017

THE Weekend Has Almost Arrived

The date has been on the calendar for several weeks...PT Weekend.
In case you don't know what PT weekend is...it's potty training weekend.

We first started working on toilet training with Big C several years ago. While we've had a bit of success, and without going into too many details, we are far from our ultimate goal in this area.

Thus, along with his therapy center, we have picked this weekend as THE weekend for Big C. I'll spend all day Friday at the center giving Big C lots of liquids and learning how to run the toilet training program at home.

His supervisor is very excited and says this is one of her favorite things to teach.

I am so glad for the different skills people in this world have, and I'm thankful that God has put someone in our lives who is super duper excited about potty training!

I will not be leaving the house this weekend. Pray for patience for us and for Big C not to hate this new skill.